In recent weeks, IBS Impact has learned that two separate entities, the County Durham and Darlington NHS Foundation Trust in the United Kingdom, and Macquarie University Faculties of Human Sciences and Medicine and Health Sciences in Sydney, Australia have established new, secure registries for those who are interested in volunteering for research studies.
The Macquarie registry is for all adults with any functional gastrointestinal disorder. IBS is the most common FGID. Information can be found here. Macquarie University Functional Gastrointestinal Disorder Research Volunteer Registry.
The County Durham and Darlington NHS Foundation Trust registry is specific to IBS and is also limited to adults at this time. According to a September 29, 2017 announcement on the NHS National Institute of Health Research site, it is part of a five year study to encourage those with IBS to be aware of and seek care and to increase participation in clinical trials. If the registry succeeds, the hope is to expand it nationwide in the future. The official website for the service, to be known as Contact ME-IBS, is linked here.
In each case, placing one’s name and contact details on the registry does not guarantee that one will be contacted or be eligible for any specific research study, as requirements for volunteers vary with each individual study. Similarly, there is no obligation to participate in a specific study if contacted. It is simply an expression of possible future interest, allowing researchers to be aware of and efficiently reach out to potential participants willing to be recruited within the IBS/functional GI disorders community.
IBS Impact welcomes researchers affiliated with academic, medical or pharmaceutical entities, or reputable organizations representing IBS or related or commonly overlapping conditions, to contact us directly with additional registries, studies or surveys they wish to be considered for posting. A contact form is available on the main IBS Impact website.
IBS Impact makes these announcements available for general information, and encourages its members and site visitors to make their own individual, informed choices about their potential participation. Additional studies can be found by clicking on the Research– Clinical Trials sub-category in the right sidebar of this blog on our main website IBS studies page. Please be sure to check the date at the top or bottom of a given post, as many posts from this blog remain visible in search engines for several years, and studies stop accepting volunteers or conclude the trials after a period of time. IBS Impact, as an entity, is not directly affiliated with any research sponsor or organization and receives no funding from any source for studies, surveys or links we feature on this blog, the main site or social media.