IFFGD Advocacy TweetChat, September 5, 2017, Prepares for Virtual Advocacy Day 2017

August 30, 2017

The International Foundation for Functional Gastrointestinal Disorders (IFFGD) has announced that it will be holding a Tweet Chat beginning at 1:00 PM Eastern Time on Tuesday, September 5, 2017. This is an opportunity for people with functional gastrointestinal and motility disorders and those who support us to discuss advocacy goals for our community. This is in preparation for Virtual Advocacy Day 2017 the following week, Tuesday, September 12, 2017. Virtual Advocacy Day is IFFGD’s annual day on which it encourages U.S. citizens to contact their members of the federal House of Representatives in support of the Functional Gastrointestinal and Motility Disorders Research Enhancement Act. (HR 1187). For information on HR 1187, see the March 21, 2017 and July 14, 2017 posts. For information on Virtual Advocacy Day, see IFFGD’s page linked here.

IFFGD’s Twitter handle is @IFFGD and the chat will be using the following hashtags #IFFGDCHAT, #HR1187 and FGIMD.

As irritable bowel syndrome (IBS), is the most common functional gastrointestinal and motility disorder, IBS Impact strongly encourages readers who are available at the scheduled time and date to join with self-advocates with other FGIMDs in the Tweet Chat, Virtual Advocacy Day or both. Amplifying our voices as FGIMD-affected people, along with others in similar situations, can increase awareness of HR 1187 and our needs to the public and to Congressional members with the power to help our community.


Online Study: Cognitive Mediators of Bowel Discomfort, Swinburne University, Australia, August 2017

August 12, 2017

The following study currently seeking men and women at least 18 years old with gastrointestinal conditions was received directly from the research team and is posted at their invitation. We are advised that the study has received institutional ethical approval. All information available to IBS Impact is below and at the study link. Please address any further questions or concerns directly to the research team at the phone number or email address given in the description.

Swinburne University
Do psychological concerns drive your bowel discomfort – help us develop a scale to better measure these processes.
Psychological distress and gastrointestinal symptoms commonly occur together and are frequently reported in community samples. Your responses will help us better understand how thinking patterns impact upon gastrointestinal discomfort. Further your participation will also help us to develop a new scale that can help better identify and target psychological processes associated with gastrointestinal discomfort.  The study involves completing an online questionnaire which should take approximately 60 minutes to complete.

Go into the draw to win 1 of 4 $100AUS Amazon.com vouchers
At the end of the study you are welcome to add your email address (stored independently from the questionnaire data) in order to go into a draw to win 1 of 4 $100AUS Amazon.com vouchers. Winners will be drawn on the 31st of October 2017.

Who can participate?
Anyone over the age of 18 is eligible to participate in the study.
How to participate?
To participate, please click on the link below:
https://swinburnefhad.au1.qualtrics.com/jfe/form/SV_1LK9FqocoRelzCZ

For more information, please contact the research team:
Principal Investigator: Dr Simon Knowles, (03) 9214 8206, email: sknowles@swin.edu.au
Other investigators involved: Dr Pragalathan Apputhurai (Lecturer in Statistics), Dr Rebecca Burgell (Consultant Gastroenterologist, The Alfred Hospital), Ms Sarina Cook (Research Assistant) & Professor Laurie Keefer (Health Psychologist, Susan and Leonard Feinstein IBD Clinical Center, New York).

IBS Impact welcomes researchers affiliated with academic, medical or pharmaceutical entities, or reputable organizations representing IBS or related or commonly overlapping conditions, to contact us directly with additional studies or surveys they wish to be considered for posting. A contact form is available on the main IBS Impact website.

IBS Impact makes these announcements available for general information, and encourages its members and site visitors to make their own individual, informed choices about their potential participation. Additional studies can be found by clicking on the Research– Clinical Trials sub-category in the right sidebar of this blog on our main website IBS studies page. Please be sure to check the date at the top or bottom of a given post, as many posts from this blog remain visible in search engines for several years, and studies stop accepting volunteers or conclude the trials after a period of time. IBS Impact, as an entity, is not directly affiliated with any research sponsor or organization and receives no funding from any source for studies, surveys or links we feature on this blog, the main site or social media.